End-of-Life Web Resources
Aging with Dignity: Aging with Dignity is an organization that advocates for the needs of elderly Americans and their caregivers. The website provides an overview of the organization's publications and projects.
Americans for Better Care of the Dying (ABCD): The Americans for Better Care of the Dying is dedicated to advocacy for better support and care systems for the seriously ill. The website contains news updates, a resource directory and information on events.
American Hospice Foundation
Association for Death Education and Counseling (ADEC): A multi-disciplinary professional organization dedicated to promoting excellence in death education, bereavement counseling, and care of the dying.
Before I Die: The Before I Die website was the online companion guide to the 1997 PBS broadcast "Before I Die: Medical Care and Personal Choices." It uses a narrative format to treat complex end-of-life medical, ethical, and social issues.
Caring Connections: Caring Connections is an advocacy organization for end-of life care. Their website provides information on advance directives, pending legislation, and a range of publications and services to foster communication on end-of-life decisions.
Cicely Saunders International
The Compassionate Friends: to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive.
Death: An Inquiry Into Man's Mortal Weakness: This well-designed website for the ThinkQuest Internet challenge is divided into three sections: causes of death, coping with death, and following death. The easy-to-browse format also includes tips for teachers.
Dying Well: The Dying Well website, created by Dr. Ira Byock, past president of the American Academy of Hospice and Palliative Medicine, contains a wide range of resources on death and life-threatening illness, plus articles by Dr. Byock and information on his books.
The End of Life: Exploring Death in America: This is a comprehensive website on death in the U.S. for people with life-threatening diseases or those who are terminally ill. The transcripts section includes links for those that wish to listen or read specific topics and stories relating to death or dying.
End-of-Life Palliative Education Resource Center (EPERC): An initiative of the Medical College of Wisconsin and the Robert Wood Johnson Foundation, EPERC provides information to physician educators about end-of-life training materials, publications, and conferences. The website requires registration for access.
GriefNet: GriefNet.org is an Internet community of persons dealing with grief, death, and major loss. We have many email support groups and two websites. Our integrated approach to online grief support provides help to people working through loss and grief issues of all kinds.
Growth House, Inc. Resource Directory: Growth House is a San Francisco-based nonprofit organization that offfers a broad range of online information on end-of-life care: from hospice handbooks to sites that give tips on explaining death to children. The website also includes an Inter-Institutional Collaborating Network (IICN) joining major end-of-life care organizations from the United States, Canada, the United Kingdom, and Spain in an online community.
Hospice Foundation of America
HospiceLink: For families in need of help and support, and referral to resources: 800-331-1620.
Innovations in End-of-Life Care: International online journal and forum on best practices to improve and manage a dying patient's quality of life and care.
The International Association for Hospice &
Medicare Rights Center: General information resource center for the Medicare program.
National Reverse Mortgage Lenders Association (NRMLA): The website for the NRMLA, a national nonprofit trade association for companies that originate, service, and invest in reverse mortgages, a frequent financing option for end-of-life care. Also contains general information on estate planning.
Promoting Excellence in End-Of-Life Care: Robert Wood Johnson Foundation national program office overseeing 22 innovative projectives nationwide to improve quality of care for terminally ill people and their families. Includes project descriptions, resources, newsletter and links.
The Robert Wood Johnson Foundation: An extensive resource directory, information on palliative care, daily journal articles, guides to coping with grief and bereavement, news, an electronic newsletter, and campaign updates.
VA Faculty Leaders Project for Improved Care at the End of Life: Information on the Department of Veterans Affairs program to develop curricula for healthcare professionals working in palliative and